on being grateful.

by - February 08, 2016


Linking up with my lovely Canadian blogging friend, Shaunacey today for a moment of gratitude, which feels like an appropriate way to start the week after a month of stress.  Well, for me anyway.

A chapter is closed.  Enfin.
Our Lucia had her MRI, we got the results, saw her brain and the beauty of.....life.  The thing is, I know that this won't be the only chapter that will likely cause me many sleepless nights of knotted-up stomach in anxiety and neck breakouts (WTF- I am almost 40, why am I breaking out?) during her life.  I am certain there will be more hurdles to surmount in her journey with a growth hormone deficiency.  But this chapter, my friends, is done.

What was found in that beautiful brain of hers, was that the bowl in which the pituitary gland sits didn't develop into a bowl and would have caused issues with the secretion of the growth hormone, more or less.  That's the simplified, non-medical Deena version account, by the way.

So while this may sound strange, this is what I wanted to hear.  You see, the MRI was done to find out the why and I wasn't at all worried about it until our new paediatric endocrinologist mentioned that the growth hormone deficiency could have been caused by tumours. And of course, that's all I have been able to focus on for the past year.  So yes.  I was scared shitless and dreading every moment of this experience.  We also had a minor heart attack during the appointment when the doctor went on to ramble about an incidental finding (yes, my mind went to scary places) which turns out that our lovely Lucia has something called a Chiari 1 Malformation, meaning in a Deena level understanding, that her brain grew closer to her spinal chord than normal and could cause issues with swallowing, headaches, dizziness, morning nausea and such.  He spoke with the neurologist about this and isn't concerned.  Apparently many people have this condition but it goes undiagnosed because not everyone has the opportunity to have an MRI. 
Anyway.
My gratitude.

I am grateful that our family doctor was on the ball enough when Lucia was 6 months old and not growing much and recommended her to a paediatrician.

I am thrilled that she has responded to the treatment and has been growing like a weed ever since we started treatment 3 years ago.

I am thankful that I have a supportive husband that listens to me when I am my least rational and gives me back rubs when I'm stressed.  

I love that Willis and the rest of our family have embraced her nightly needles and are there to cheer her on when she needs it, help her give the needle to her stuffies or even take one themselves to show her she can do it.

I am feeling fortunate that this is all we have to worry about.  Things could be much worse.

and lastly, and honestly, I think most importantly, I feel blessed to have people..and even if said people are far removed from my world or my close circle of family and friends...the support makes want to cry.  Former students, former parents of students, colleagues, people we grew up with, people I know through other people, extended family....regardless who they are, it makes me smile to see the likes and the love that come for our little lady.

Lucia growth hormone


So yes, I am feeling extremely grateful and mostly, the love is felt and that is a wonderful feeling.

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16 comments

  1. I'm glad you got the answers you needed! Prayer is a powerful thing! She is sooo cute and so brave!!

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  2. I am so so so so so so so glad you got the answers you were looking for AND that was positive.
    Seriously, I admire you AND Lucia (and your whole family really). I know there have probably been many times where you had to be strong for her. And her, well, she's a little rockstar for having had to endure what she has for so long. Dan and Willis get accolades two, I'm sure they've been rocks for you and Lucia despite what they've had to go through too.
    Here's to your word of the year 'health'!!! xo
    thanks for linking up ;)
    Confessions of a Frumpy Mommy

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  3. Great post about little miss lucia. Gald you can put your stress to rest.

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  4. Yep, there's always things to worry about. But then there are those BIG worries, and this has been one for sure. You all are amazing, and being strong together and getting through it as a family is key. So glad that the MRI turned out so well, and now you can move forward.

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  5. Living on Cloud Nine28 January, 2018 22:18

    So so grateful no tumors!! What a sweetie pie!!

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  6. So sweet and you are blessed!

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  7. YAY!! So happy for sweet Lucia and all of you!!

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  8. Yay!!! Wonderful, wonderful, wonderful!

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  9. Such great news!!

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  10. Wonderful news! So happy for you and your sweet little girl!

    Jill
    Doused In Pink

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  11. Such a reminder of perspective and gratitude. So glad for her and you! Also, I love reading your writing because the French always sneaks through and I love it. Surmonter les obstacles? It's just the RIGHT word.

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  12. I am grateful that you have Lucia's good news to be grateful for! There will be trying times in the future...comes with preteen girls, I am afraid, but this is one chapter you are able to close the door on. Hallelujah!

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  13. So great to reflect back and give thanks. My brothers little girl was recently diagnosed with an overactive gland. She is growing WAY to fast :(. Hopefully we will look back on her story in a few years and be just as grateful.

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Have a lovely day!